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27379 Hatty Hide easter accomplished professional photographers blooming garden rozebrani black hair Ehlers Danlos hEDS hypermobile spoonie spoon theory zebra warrior chronic illness daily vlogging video log daily video diary public diary my life about me video journal directions ebony hair dye blood pressure disability living with a chronic illness building a shed spring cleaning how I live with EDS
EDS Vlog – Becoming A Goth (Easter Sunday) [01.04.18]
Original was uploaded on 2018-04-05
Hello, and welcome to my channel. In today’s video I wish you a happy Easter, do some spring cleaning, find a pot of temporary hair dye and show you my new colour by candle light. Meanwhile, my mum and her partner build a shed.
These are short, daily video journals showing my chronic illnesses and how I live with them as a disabled woman in her 20s. I’m a wheelchair user with Ehlers Danlos Syndrome (hEDS), digestive problems, gluten and lactose intolerance and Postural Orthostatic Tachycardia Syndrome (PoTS).