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27379 Hatty Hide public diary how I live with EDS Ehlers Danlos my life hEDS about me hypermobile video journal spoonie directions ebony spoon theory hair dye easter zebra warrior blood pressure accomplished professional photographers chronic illness disability blooming garden daily vlogging living with a chronic illness rozebrani video log building a shed black hair daily video diary spring cleaning
EDS Vlog – Becoming A Goth (Easter Sunday) [01.04.18]
Original was uploaded on 2018-04-05
Hello, and welcome to my channel. In today’s video I wish you a happy Easter, do some spring cleaning, find a pot of temporary hair dye and show you my new colour by candle light. Meanwhile, my mum and her partner build a shed.
These are short, daily video journals showing my chronic illnesses and how I live with them as a disabled woman in her 20s. I’m a wheelchair user with Ehlers Danlos Syndrome (hEDS), digestive problems, gluten and lactose intolerance and Postural Orthostatic Tachycardia Syndrome (PoTS).
